Karly and Izzy at the WHS gatheringKarly visited the neurologist on Friday and had a good visit. We spent quite a long time with the doctor and reviewed her medicine and her seizures. We as a group we have decided to change her seizure medicine to Keppra and take her off Topamax. It will take 10 weeks until she if fully changed for one medication to the other. Many of the WHS kids are on Keppra and seem to do really well on it. We are all hoping that this will reduce the number of breakthrough seizures that she has. Cross your fingers because I can't take anymore seizures...too many lately.
Yesterday Karly, Daddy, and Ethan went to friends of ours to visit with other WHS families. They had a great time catching up with other families and sharing stories. Karly and Ethan had a great time. It is so wonderful that we are fortunate that WHS families nearby. It so awesome to be able to share stories and see the others kids. Unfortunately my kids shared their sickness with me and I had to miss the party which made me very sad. Hopefully next time, sounds like we will get together in the spring.
Yesterday Karly, Daddy, and Ethan went to friends of ours to visit with other WHS families. They had a great time catching up with other families and sharing stories. Karly and Ethan had a great time. It is so wonderful that we are fortunate that WHS families nearby. It so awesome to be able to share stories and see the others kids. Unfortunately my kids shared their sickness with me and I had to miss the party which made me very sad. Hopefully next time, sounds like we will get together in the spring.
LOVE that picture of our girls! Oh and Karly is just awesome!!! She is so affectionate and I really wanted to take her home with me! Izzy and Norrah would have loved that. She is doing so well, Jenn and she is a smarty pants!
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